Only a few decades ago, the number of adults with cystic ﬁbrosis (CF) was relatively sparse because those who inherited the disease seldom survived childhood. Today, thanks to earlier diagnoses and improved treatments, most patients are living well into adulthood, according to the CF Foundation’s national registry.
The UT Southwestern Adult Cystic Fibrosis Program is one of the largest adult CF programs in the country and the only adult CF program in Dallas accredited by the CF Foundation. The program’s multidisciplinary medical team includes board-certiﬁed clinicians who specialize in CF, as well as nurse practitioners, nurses, dietitians, social workers, and respiratory therapists exclusively dedicated to CF care.
“Over the past few years, we have grown and improved our program to better serve our patients in many ways,” says Raksha Jain, M.D., the program’s Director. “First, the adult program relocated from Children’s Medical Center, our affiliated pediatric center, to St. Paul University Hospital in order to focus care on adult-centered needs. However, we continue to have a close relationship with the pediatric CF program at Children’s to make the transition from pediatric to adult care as smooth as possible.”
Importantly, the team is affiliated directly with the UT Southwestern Lung Transplant Program to allow for successful care of patients with advanced lung disease if lung transplant is needed. The CF Foundation has designated the UTSW program as a clinical research center, which allows patients to participate in the most cutting-edge clinical trials available for the disease.
Currently, the program has more than a dozen active studies geared toward new therapies for CF. “The life expectancy of patients with CF is continuing to improve,” says Dr. Jain. “We’re making every effort to continue that trend by providing specialized care and promoting research to help make new therapies available.”
Request an Appointment
To schedule an appointment with a cystic ﬁbrosis specialist, call 214-645-8300.