Neurofibromatosis is a genetic disorder of the nervous system. It causes benign tumors called neurofibromas to slowly grow on nerves anywhere in the body – brain, spinal cord, and large and small nerves. It’s typically diagnosed in childhood or early adulthood.
You can inherit Neurofibromatosis from your parents or through a mutation in your genes at conception. Once you have it, you have a 50 percent chance of passing it along to each of your children.
At UT Southwestern Medical Center, our physicians provide lifelong care for Neurofibromatosis (NF) patients. Our Comprehensive Neurofibromatosis Clinic, in conjunction with the NF Clinic at Children’s Medical Center Dallas, offers expert diagnosis and treatment for each type of NF from childhood through adulthood.
We have the state-of-the-art technology, cancer screening services, and subspecialists with the experience and background to meet the individual needs of NF patients.
The NF Clinic at UT Southwestern treats patients with all three types of NF. Although these share the name of Neurofibromatosis, they are unique disorders with different symptoms and presentations. There is no proven cure for NF, and clinical follow-up is critical.
UT Southwestern is a leader in research of genetics and hereditary diseases. We’re committed to providing and developing new treatments for NF patients at each stage of their lives and disease. Our multidisciplinary team approach provides consistent care for NF patients throughout their lifetimes.