Transition from hospital to home following hematopoietic stem cell transplantation: A feasibility study for "rooming in[Double Quote]

Study ID
STU 112015-076

Study Sites

  • Children’s Medical Center (Dallas, Plano, Southlake)

Contact
Gevel Jackson
2144567194
Gevel.Jackson@childrens.com

Principal Investigator
Victor Aquino, M.D.

Summary

The study will report data on 35 pediatric patients who are discharged following hematopoietic stem cell transplantation (HSCT). The patient's caregiver will report on perspectives of discharge utilizing the clinical practice of [Quote]rooming in[Quote] described in the protocol. The discharge period consists of the day of discharge to 30 days post HSCT discharge. Parents will be asked to complete written questionnaires on the day of hospital discharge as well as additional questionnaires during follow-up clinic visits 30 days post discharge. Data collected on the day of discharge will consist of questionnaires in which parents will complete the following: (i) Quality of Discharge Teaching Scale and (ii) Readiness for Hospital Discharge Scale. Researchers will complete: (i) Data Collection Form.

Data collected at the 1 month subsequent clinic visit will consist of questionnaires in which the same primary caregiver will complete the following: (i) Quality of Discharge Teaching Scale and (ii) Post-discharge coping difficulty scale.

all data collected will be analyzed and evaluated for effectiveness of the clinical practice of [Quote]rooming in[Quote] on readmission rates as well as caregiver perspectives of the discharge transition. Readmission rates will be compared to existing readmission rates for patients prior to the [Quote]rooming in[Quote] to measure effectiveness of [Quote]rooming in[Quote] on patient outcomes. of note, the parent readiness for discharge scale, the quality of discharge teaching scale-parent form, and the post-discharge coping difficulty scale are validated tools.

Participant Eligibility

Patients between the ages of birth to 21 years
Patients who have received an autologous or allogeneic HSCT
Patients with an identified caregiver
Patients who are/were discharged home following an autologous or allogeneic HSCT
Ability to read English